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Tayen from Bridgwater is six years old and has a genetic condition called Neurofibromatosis Type 1. The condition is incurable and causes tumours to grow on nerves anywhere in her body. She has complex epilepsy, hydrocephalus and is fully blind. Tayen has already endured two rounds of chemotherapy and will need more at some point in the future.

Despite her condition, Tayen has a zest for life and enjoys spending time with her family; mum Kali, dad Kevin, and brothers Matthew, Lucus and Connor.

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Children’s Hospice South West (CHSW) was delighted to have the support of Somerset County Cricketer, James Hildreth in his 2017 Testimonial Year and on Thursday 8 March 2018, he visited the charity’s Little Bridge House hospice near Barnstaple to present a donation for £11,000, raised through all his fundraising activities through the year.

James pledged support in his Testimonial Year to the Professional Cricketers Association (PCA), and CHSW, and embarked on a series of fundraising matches and other activities, including the epic ‘Hildy’s Hospice Hike’ which took place in October 2017. The

Four companies with a local presence are joining forces to sponsor the annual CHSW Rainbow Run in Bristol on Saturday 2 nd June.

Osborne Clarke, Fiveways Financial Planning, PB Design and Unum have each sponsored a paint station at this family-friendly 5k run that’s taking place in the beautiful grounds of Blaise Castle Estate.

It’s one of CHSW’s biggest sponsored events, which last year raised £79k for CHSW’s local hospice, Charlton Farm. Anyone aged 5 and above can take part; run, walk or jog through colourful explosions of paint with your friends, family or colleagues and raise vital

Ray Hales, aged 90 and his friend Arthur Bennett, aged 86 from Barnstaple are braving an incredible skydive to raise funds for Children’s Hospice South West (CHSW) and North Devon Hospice.

They will both be jumping from Dunkeswell Airfield, near Honiton on 20 May 2018 and Ray said: ‘I jumped on behalf of CHSW when I was 85, and vowed, if I was still fit when I was 90, then I would do it again. I’m really delighted that my good friend of over 30 years, Arthur will be joining me this time in raising money for both hospices-

Principle and Ensemble cast members of Wicked, the spectacular West End and Broadway musical, made a special visit to see the children and families currently staying at Bristol’s dedicated children’s hospice, Charlton Farm.

Helen Woolf, Steven Pinder, Kim Ismay, Emily Shaw and Iddon Jones alongside Ensemble cast members filled the hospice with music and song, took part in activities with the children, and generally raised the roof at Charlton Farm, which currently supports children with life-limiting conditions and their families.

13 year-old Emily, who is supported by Charlton Farm along with

Local surf and lifestyle retailer Ann’s Cottage has been confirmed as the main sponsor for Children’s Hospice South West’s Rainbow Run in Newquay which raises vital funds for CHSW and its Little Harbour children’s hospice in St Austell.

Ann’s Cottage has sponsored the 5 km fun run since its first year in 2014 and its sponsorship means that more of the money raised by those taking part can go straight to the charity rather than going towards event costs.

The Rainbow Run is a fun run with a difference and involves participants of all ages running through different coloured paint stations around

Edwards Vacuum (part of the Atlas Copco Group) is a global engineering company based in Clevedon and is generously sponsoring Children’s Hospice South West’s (CHSW) 10 th Ride for Precious Lives event.

The Ride for Precious Lives is a 205 mile, 3 day, cycling challenge which has been completed by over 750 cyclists over the last nine years and raised an incredible £725,000 for CHSW.

Ride for Precious Lives will be taking place 6 th – 8 th July and encompasses all three of CHSW’s children’s hospices across the south west region. It will start at Little Harbour in Cornwall, visit Little Bridge

Not content with walking 138 miles non-stop in support of Children’s Hospice South West (CHSW) in 2017, long term supporter of the charity, Mark Edwards, new fundraising challenge is attempting an official 50 hour non-stop bass guitar playing Guinness World Record bid!

The current record is 40 hours and Mark’s attempt to set a new World Record will take place over the Easter weekend at the Fairway Buoy in Westward Ho! Mark will have to play recognised songs non-stop to a ‘reasonable standard’, and the event must be filmed throughout.

Mark is hoping to raise £2000 for CHSW and said:

I will be

A team of 21, including 14 employees from Royal Cornwall Hospital Treliske (RCHT) X-Ray Department and 7 friends and family, embarked on the Three Peaks Challenge last year raising funds for Fistral Children’s Ward at RCHT and Children’s Hospice South West (CHSW).

A total of £6034.32 was raised which will be split evenly between the two causes.

The challenge was to complete the three highest peaks in Scotland, England and Wales in 24 hours however after a 14 hour journey to Scotland from Cornwall along with a few injuries and setbacks the 24 hour target became less of a reality.

The team

Two supporters of Children's Hospice South West are taking on the London Marathon this year in support of Children’s Hospice South West (CHSW) – and for both it’s their first ever marathon!
Emma Smale, aged 33 from Bideford used CHSW’s Little Bridge House hospice in Fremington for support and care with her daughter Imogen before her death in March 2016. Emma wanted to give something back to the hospice for the help it had given her and her family, and decided to aim big by applying for one of the charity’s places at this legendary event.
This will be Emma’s first ever marathon and she said:

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