40 year old Cerwyn Burnett from St Mawes is in full preparation for her 96 mile sponsored walk across the West Highland Way in Scotland later this month and is taking on this challenge to help raise vital funds for Children’s Hospice South West (CHSW) which supported her family through an incredibly difficult time.
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Tayen from Bridgwater is six years old and has a genetic condition called Neurofibromatosis Type 1. The condition is incurable and causes tumours to grow on nerves anywhere in her body. She has complex epilepsy, hydrocephalus and is fully blind. Tayen has already endured two rounds of chemotherapy and will need more at some point in the future.
One 77 Mortgages based in Chippenham, Wiltshire, has chosen Children’s Hospice South West (CHSW) as its Charity of the Year.
Darren Walker, Head of New Business at One 77, has experienced first-hand how the CHSW helps families at a difficult time in their lives. Darren’s son Morgan was born 8 weeks premature, weighed just 3lb 10oz, and had to be rushed to the neo-natal intensive care unit (NICU), where he was put on a machine to help him breathe.
Emma, 33 from Bideford in Devon, is taking part in the 2018 London Marathon for Children's Hospice South West (CHSW) in memory of her eldest daughter, Imogen. Here, she says in her own words why taking part in the marathon and fundraising for CHSW is so important.
Children’s Hospice South West’s Little Bridge House received an early Christmas gift on Thursday thanks to a show of generosity from National Lottery winners.
Past winners from across the south of the country spent 24 hours creating a giant ‘gingerbread’ playhouse for children and their families to enjoy.
Among those taking part in this weekend’s annual Santa Run in Exeter is a group of health workers who have been inspired to take part in memory of an 11-year-old girl who recently died.
Emily Crisp, from Bradninch, had a very rare condition called Bohring-Opitz syndrome that affects the development of many parts of the body.
She was diagnosed when she was three months old and at that time there were only 30 other known cases of it in the world.
The North Devon Gazette’s much-loved light Up a Life appeal was launched to an audience of thousands this year.
It was marked with the switch-on of a special illuminated star in Barnstaple Square during the town’s Christmas lights celebrations on Sunday.
Now in its 21st year, the appeal has become a Christmas tradition to enable people to remember a loved one and help raise money for North Devon Hospice and Children’s Hospice South West.
The charities host a series of services of remembrance across North Devon through December.
The Light up a Life services give families an opportunity to celebrate and remember those who cannot be with us.
Emma and Mark Smale from Bideford lost their daughter Imogen in March aged just four-years-old.
They cannot ever thank the Children’s Hospice South West team at Little Bridge House enough for what they did for Imogen but also the whole family.
"He's looked after by nurses and has all his very complex needs taken care of and is given all his fluids and medicines. You get a chance to recharge your batteries and get that breather you need to carry on. The hospice has been a massive support.
"Samantha and I tend to do a lot of visits to the hospice together and we can do normal mum things like have a glass of wine, chill out and chat – things we don't get much chance to do otherwise. We get to be mums. Without the hospice we wouldn't survive."