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"He's looked after by nurses and has all his very complex needs taken care of and is given all his fluids and medicines. You get a chance to recharge your batteries and get that breather you need to carry on. The hospice has been a massive support.

"Samantha and I tend to do a lot of visits to the hospice together and we can do normal mum things like have a glass of wine, chill out and chat – things we don't get much chance to do otherwise. We get to be mums. Without the hospice we wouldn't survive."

A children’s hospice in Wraxall is hoping to entice former nurses back into the field by offering to pay for a return to work course.

Children’s Hospice South West (CHSW) is offering the incentive to tackle the nationwide shortage of nurses in children’s palliative care.

The lack of staff has been affecting the care available to children with life limiting conditions, but CHSW wants to show how rewarding the role can be.

There are more than 50,000 children and young people in the UK who are expected to have short lives and the number is rising. These children have complex and unpredictable health conditions and rely on qualified children’s nurses with the right skills to provide palliative care and symptom management. Yet there is currently a shortage of children’s palliative care nurses and this is already having a negative impact on the care provided to children and families.

To be forced to watch one child slowly die is an unbearable pain no parent should ever have to experience. But to have two daughters diagnosed with a terminal condition seems an incredibly cruel twist of fate.

Amazingly Abida Ahmed, from Lockleaze, is battling through the horrific trauma; yet she manages to care for herself, her three other children, and even cooks for her friends and neighbours on a regular basis.

When her daughter Hadiya was six months old she was diagnosed with a rare brain condition called GA-1, which affected proteins in her body.

A record number of cyclists have powered through North Devon on their way to raising nearly £100,000 for Children's Hospice South West.

Taking place across three day and through three counties, Ride for Precious Lives sees cyclists from across the country peddle the 205 miles between each of the region's three children's hospices.

Samantha Cameron held the special evening reception to mark the charity’s 25th anniversary this year.

Samantha Cameron has hosted a special reception at 10 Downing Street to celebrate 25 years of Children’s Hospice South West.

The reception was attended by more than 100 guests, including families who have used the hospice.