Finley is one of just 70 children in the world known to have a rare genetic condition known as Sodium Channel Brain Disorder, or SCN2A.
Finley, his younger brother Jett and his parents, Kevin and Louise, receive much-needed respite at Charlton Farm.
The hospice gives us that time together as a family and creates so many memories that we can treasure for ever. It is our support pillow; it is there for us 24-7 and when the time comes for Finley, it will be supporting us through what will be the darkest moments of our lives and many other families’ as well.”