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William's story

William’s mum, Adele, shares their story to help others...

William is 14 years old and has Myotubular Myopathy and Scoliosis which is a rare muscle condition that causes severe muscle weakness and affects his ability to...
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Molly's Story

Shelley and her children, Molly, Willow and Bobi-Bryn live...

“When I was pregnant with Molly, I was having extra scans because of my age, and they discovered on one of the scans, 4 weeks before Molly was due, that she had...
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Skye's Story

Skye’s 8 year old sister Evie has a rare chromosome deletion...

Skye’s 8 year old sister Evie has a rare chromosome deletion and kidney problems which has resulted in her having complex needs. Skye has taken on a lot of the...
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Evie's Story

Evie is a sociable 8 year old, who loves to be in the thick...

Amy and Shane, from Plymstock, found out they were having a little girl during their 20 week scan. But at the scan, professionals noticed that Evie had...
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Adela's story

On 11 April 2025, Nicholas would have turned 30. 

For his younger sister, Adela, this milestone birthday carries an emotional significance - not only because of what it represents for Nicholas, but because 2025...
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Leo's story

Naomi and Rhodri from Portishead, North Somerset, welcomed...

Naomi had a smooth pregnancy. However, just a few hours after Dylan’s birth, Naomi noticed a change in his skin colour and alerted the nurses, who quickly took...
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