THE DAISY CHAIN fundraising page.
Let us tell you about our beautiful and courageous little daughter, Daisy Elizabeth Warn. Daisy was diagnosed with a rare and most severe (Type 1) Spinal Muscular Atrophy, an incurable neuromuscular condition causing weakness of the muscles.
Daisy passed away on 2nd November 2009, aged just 16 weeks.
Research evidence showed that the chance of her getting this condition was one in a million and everyone said how unlucky we were. In fact, Daisy was an inspiration to us all. Although she was unable to move her body, she had so many facial expressions, incredible sparkling eyes and a smiling face of vibrant beauty! So, yes, she truly was one in a million and we were so lucky to have shared those special weeks with her.
The Daisy Chain Fund will raise money for this incredible charity, the only organisation in the South West which offers help and support to children and their families who are living with life-limiting conditions. Little Bridge hospice is an amazing place, which provided Daisy, myself & my husband with fantastic medical and emotional care, support and love throughout and until the end of Daisy’s short but happy life.
THANK YOU everyone, you have all been amazing and because of your generosity we have far exceeded our initial target and done Daisy proud. Because of this superb effort we have decided to keep going - our new target being to raise £20,000 by the Summer of 2011. So we're sorry, but we'll keep asking for your help and assistance along the way and if we can get there we give even more to the new hospice at St Austell (Little Harbour).